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Not All Experts Are Equally Expert – Video

ADHD is not yet very well understood by medical science. The diagnosis of ADHD in Adults is less than 25 years old. Many doctors remain woefully ignorant of what ADD looks like in adults, how would overlaps other disorders, or how to diagnose it. The result is that many adults who have been struggling with undiagnosed ADD their whole lives are misdiagnosed as suffering from Depression or an Anxiety Disorder. Beyond legitimate confusion about this complex syndrome there is a great deal of mythology, deliberate and malicious misinformation, moralizing, and judgment. And whenever people are fearful or suffering there are those willing to make a buck by telling them whatever they so desperately want to hear. The result? A lot of bad, outdated, useless, even dangerous advice floating around.

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14 Responses to “Not All Experts Are Equally Expert – Video”

  1. elemeno says:

    Not all experts are about helping you, that’s for sure. Over 20 years ago, I was diagnosed at a clinic for adults held by the researchers at a Developmental Behavioral Neurology Unit of the Department of Psychiatry, College of Medicine of a major university. I was looking for an accurate (as possible) diagnosis and… HELP! After 3 days of testing by M.A., PhD, and M.D. level people I was given what I think were several accurate diagnoses of my ADD and other associated disorders (dyslexia, etc.,).

    While I was (and am) grateful for the diagnoses, what I did not get was any help whatsoever. After giving me names for the raft of disorders I had been struggling with all my life, the M.D. multiple PhD head of the department woman said I was, “well compensated,” and therefore, “really didn’t need,” any help. Uh, what?? I tried to explain to her, how can I not need any help when (for just one example) I have a “time thing” which is a constant struggle? Her answer to me… get this… “Buy a DayTimer,” (a kind of appointment book… and I already had one). Buy a DayTimer???!!! Really??? That’s IT? I am not kidding, that is exactly what she said to me. With all her multiple advanced degrees, that’s the only advice she could offer?? It was shocking… and lame… I looked at her in disbelief.

    I was glad that at least I had names for the things I was dealing with, but if the teaching hospital of a major university can’t help you, where on Earth do you go? My hope of getting some kind of help was dashed. I felt let down, deflated, lost, and alone in my struggle… again. I returned to my car in the parking lot and cried for a good portion of the 3+ hour drive home. Where I lived there was nothing for adults with ADD, and this was before personal computers. Years later someone said to me, “Well, researchers research; that’s what they do. Treating people wasn’t their thing, so they had nothing to offer you.” In other words, my goals weren’t their goals, so I was out of luck expecting help.

    To this day, the only help I have received has come from books and the internet. So I appreciate sites like Totally ADD.

  2. Rick says:

    Love the observation that the truth often lies in the middle, or average, or a lot of expert opinions. I often wondered if people who bet on sports would do better to pick one game, find out what dozens of experts are predicting, take the average, and bet on that.

    Is this why getting a lot of input from people in the ADHD community, and reading a range of books, or watching videos with a range of experts, is more empowering than just following one piece of advice?

  3. acerErin says:

    Great video. The only place I have ever seen as crazy as that building is the NAV Centre in Cornwall. Not a great place to get lost or side tracked in. Maybe a test of navigation abilities of the students.

  4. lou2 says:

    Enjoyed all of your rants, Rick! Keep it up!

  5. Wgreen says:

    Daedaus Bros. Architects. One of ’em probably is still in there trying to find his way out…

  6. moime3d says:

    I am going through misdiagnosis! I am pulling my hair out because every diagnosed add/adhd person i talk to confirms my suspicions of having it! This whole blurb written above is what I’m going through… How do I pursue getting another assessment done. This is on my mind every day.

  7. Tim says:

    Generally good advice and an interesting example.

    In spite of usually wanting to accept the first expert (roofer, psychologist, teacher etc.) that I run into, I have learned to spend a bit of time and energy that I usually don’t want to spend to research the field. I can be quite impulsive(!) and this takes considerable self restraint.

    This is how it was when I decided on a well known ADHD clinic in Toronto and purchased a series of coaching sessions. The clinic contains an MD who specialises in ADHD and there is a group of well credentialed coaches. All seemed as it should.

    I drove into Toronto faithfully to keep my appointments and at first it was good because they clearly knew where I was coming from, took me seriously and helped me feel comfortable talking about what the last 57 years of my life had been like.

    However, that’s as far as it got. It soon became clear that no one was able to help me get beyond this point and live a better life. As expert as this group is, they oversold themselves, probably unknowingly. Somehow I don’t fit into their model and the process came to a dead end.

    So, in spite of doing everything right (I think) my result was well below my expectations and I’m at a loss to know what else I might do.

  8. ADDled says:

    You have to wonder if the Fire Marshall has inspected this building. The signage for the emergency exits are there. But in the confusion of evacuating the building these all these corners prevent a quick movement of people. Never mind the confusion and panic…then all bets are off.

    I saw a documentary about air crashes and several psychologists ran a series of experiments to show what really happens sometimes when people panic and try to escape through an emergency exit. Let’s just say that in some cases the “reptilian response” took effect for some people and were literally crawling and pushing others out of the way.

    Your comments about asking questions is valid. Most of us have been brought up to never question experts or professionals when when we seek their help. How many of us have asked for second opinions or another diagnosis? I think most of us don’t have the critical thinking skills to ask those questions or even encouraged to think that way.

    I also believe that as a society we’re not expected to question things, we are made to believe we don’t have the intelligence to think for ourselves and form our own opinions.

    Except those of us with ADHD, of course.

  9. wolfshades says:

    Rick – I think I know that place. It’s in Cornwall, yes? I recall having to carry a map around with me at that place, for the full length of time that I was there. I had to memorize the colour schemes, so as to get to the correct colour elevator. Had to make sure I was heading south and not east when it came time to go back to my room (yeah, like I was ever going to figure that one out). The place was a maze. An absolute nightmare.

  10. klmillscats says:

    Great video,very helpful. Thanks Rick!

  11. Larynxa says:

    This reminds me of when I took the “scenic route” and rode the Flemingdon Park bus all the way from Broadview station to Eglinton & Laird.

    As we meandered along all those twisting, turning streets, I was soon thoroughly lost and had given up on trying to keep track of where we were. When the bus turned onto Eglinton, my relief was palpable.

    As I alighted, I not only thanked the driver, but congratulated him on his incredible sense of direction!

  12. seabassd says:

    Now I want to stay there. Anything unique is exciting.

  13. seabassd says:

    “Trust Your Gut”
    I agree 100%. I’ve had red flags come up before and ignored them. When you suffer for so long with ADHD you’re belief in yourself craters and you impulsively cling to anyone promising an answer. Their intentions may be good but their answers may be wrong. There’s something to be said for common sense.

  14. cabanadan says:

    If you haven’t yet, you should read “Wisdom of Crowds” by James Surowiecki. He explains how an average of normal people will be better than any expert. I never had faith in polls until I read his work. We should have polls on Totally ADD!

    Also, to quote my favorite physicist, Richard Feynman, “science is the belief in the ignorance of experts.”