Dr. Umesh Jain is now exclusively responsible for TotallyADD.com and its content

99% sure I'm ADHD & now I have to circumnavigate getting diagnosed?? Cruel joke!

99% sure I'm ADHD & now I have to circumnavigate getting diagnosed?? Cruel joke!2011-09-21T16:02:23+00:00

The Forums Forums Emotional Journey My Story 99% sure I'm ADHD & now I have to circumnavigate getting diagnosed?? Cruel joke!

Viewing 0 posts
Viewing 15 posts - 31 through 45 (of 67 total)
  • Author
    Posts
  • #108444

    Anonymous
    Inactive
    Post count: 14413

    The best specialists ask the questions you’d never think of asking, at least that’s what happened for me.

    Shootingallery, try the quiz on this site. If you score high, look into it further. But keep in mind there are other conditions that can appear to be ADD. It’s a hard one to nail down by yourself.

    REPORT ABUSE
    #108445

    wolfshades
    Member
    Post count: 211

    Stash: I had to laugh out loud when I read about you riding your bike into a parked car. Hopefully you weren’t hurt (that would not have been a laughing matter) but if you did it like I did, you were probably more embarrassed than anything. It happened when I was a youngster. In fact, I injured myself quite often over things that seemed to me (and everyone else) quite stupid. No one equated the lack of focus as being anything other than childhood stupidity. Go figure huh?

    REPORT ABUSE
    #108446

    wolfshades
    Member
    Post count: 211

    KrazyKat: you might want to mark down a list of questions to bring to your appointment. I did that, and made a list of all of the things I had noticed that lead me to realize I might have ADHD as well. I was sure I’d forget otherwise (in itself, somewhat of a symptom!). That way you might not be as worried.

    Oh, and it helps to bring a pen and a pad in with you as well, to make notes when the doctor answers you.

    (And if you’re like me, and you think this is a good idea, your best bet is to get them out and ready now, and place them in a “speed bump” location so that you don’t forget. Otherwise – if you’re like me – you will. :) “Speed bump location” for me is putting them on my shoes so that I have to see them before going out)

    REPORT ABUSE
    #108447

    Stash
    Participant
    Post count: 59

    @orgo – the initial consult was $200, the total 3-4 week thorough assessment was an additional $1000, then if you go into treatment with them, it is covered under our health coverage. Thankfully I have a family experience of going to the family practice unit at a teaching hospital which is very progressive, and is covered by OHIP. I’m glad that at least we have some options.

    @krazykat – Glad that things are looking more positive for you! I can’t imagine where’d I’d turn if the first appointment hadn’t gone well. I had a quiz with me, that never left my bag. Had I met resistance to moving forward with testing, I think I would have used that as proof that it is necessary, but I think I’d rather have a properly administered test.

    And yes, I too fell to pieces after the appt. I was to meet my sister, but of course neglected to print out the map of where to meet her, drove around (I had time to kill between dr and meeting her) and still didnt find spot, then hit construction, so parked and walked around aimlessly. Got so frustrated I almost got back in my car and left town without seeing her. That’s when I realized just how hard my daily life can be, and of course that made me more upset. (We did end up connecting after I finally asked a stranger for help)

    @wolf – glad you laughed! It is funny! And I’m so glad I’m not the only one! I was very embarassed, but the only real damage was to the front wheel of my bike. I spent of lot of my childhood in the emergency room with injuries of one sort or another. Currently have multiple cuts & scrapes and bruises from a variety of clumsy incidents!

    REPORT ABUSE
    #108448

    wolfshades
    Member
    Post count: 211

    @stash: I just realized: even through my adult life I was injuring myself one way or the other too. And it seemed always to be stupid stuff: falling down a short flight of stairs that didn’t pose a problem for anyone else; I even broke my leg getting *onto* a bus if you can believe that. Like you said: “clumsy incidents”. Never put two and two together before your last post here, but it makes sense. Every time something happened, I *know* my mind was far off somewhere else instead of concentrating on what I was doing.

    Most embarrassing adult incident: it was a sunny day and I was out for a walk at noon hour. I was wearing a long coat, and my hands were thrust deep into both pockets. Once again – my mind was busy playing games with itself, and having a lot of fun. My foot caught something on the sidewalk, and down I went. Only, because my hands were so deep into my pockets, I couldn’t get them out in time.

    A car stopped and someone asked if I was OK. I told them I was, but I really wasn’t: the entire right side of my face was scraped raw and bleeding, and I think I got a black eye out of the deal too. My boss was horrified when I got back, and she asked me if I had been in a fight. When I told her what happened, she didn’t believe me. I know this because she said “it’s OK. You can tell me. You were in a fight weren’t you?”

    :) I can laugh about it now. But back then – not so much.

    REPORT ABUSE
    #108449

    Stash
    Participant
    Post count: 59

    @wolfshades – I’m sorry – but I laughed out loud at that image! Mostly because I know I have a hole in at least one pair of pants from a similar feat!

    So, I’m finding that now that I’m aware of it, I’m more scattered than ever! And recognizing feelings of frustration that I chalked up to other causes in past, but am seeing that they are as a result of things not being in order. For instance, I had to make breakfast for some folks this morning unexpectedly, and everything I reached for was either running out, dirty, out of place, not the right product, etc, etc. Nevermind that the whole act of making breakfast was not in my plans. I got increasingly frustrated, almost cried at one point, am pretty sure I was kind of rude to a couple of people, and now that it’s all over, I’m angry that I was thrown in this situation and angry that I couldn’t cope with it better.

    Wow. So thankful for this outlet…. I don’t know that anyone else in my world would actually understand that last paragraph…

    REPORT ABUSE
    #108450

    Stash
    Participant
    Post count: 59

    Tomorrow is the big appointment!

    I’m currently trying to make myself make some notes. I’m not sure if I’ll be able to, but there have been so many thoughts swirling this last little bit, so many memories of things I had completely forgotten (like failing Home Economics and Art in Grade 8, mostly due to incomplete projects), and I am afraid I won’t remember any of them when it counts!

    I’m feeling surprisingly zen about tomorrow. Honestly, I’m more worried about making it to the 10am appt on time!

    I think it’s because I am finally taking charge of something in my life, and it’s a really big deal! A bit proud of myself really. Oh! And I finally did laundry last night! Now I don’t have to buy more socks…. ;-)

    REPORT ABUSE
    #108451

    billd
    Member
    Post count: 913

    DO MAKE notes and take them! You’ll forget key points, key issues otherwise. I left out so much because on the spot, I couldn’t think of them, I’m not a person who can think on their feet. If I don’t plan it and make notes, it’s gone and even if asked “can you think of anything back in school”, I won’t be able to.

    REPORT ABUSE
    #108452

    Anonymous
    Inactive
    Post count: 14413

    I really thought I had Asperger’s before I read more about ADHD. I took the AQ test (Asperger Quotient) test and scored just a point below where they consider you a “clinical” case. Now I see there is a lot of overlap. I am 68, a former school teacher, mother of six, grandmother of three, married 48 years this month–to the SAME GUY, which I consider a miracle, because I know a lot of guys couldn’t have lived with me for a year, let alone 48. My most overwhelming feeling is one of disappointment in myself and shame. I’ve always known I was different, but just didn’t know how/why. I will see my family dr for routine physical in another week and I’m going to bring up ADHD and see if he will refer me to a clinic in Seattle. I am worrying a lot about what he will say (we have differences in the past) and I’m hoping I don’t talk myself out of talking to him about it. With our insurance, a lot of specialty services aren’t covered unless you’re referred by a GP. Wish me luck!! I’ll report back.

    REPORT ABUSE
    #108453

    Stash
    Participant
    Post count: 59

    @billd – thank you. I didn’t actually get to the list making (big surprise…), and I know I forgot some things, and I did zone out a bit here and there, but I’ve been doing so much thinking about this stuff lately, that I was able to remember some key things, and actually her questions even triggered some new things.

    After my appointment I went for lunch with my dad and we had an amazing discussion! I had him go through a childhood checklist on me, and it was amazing how he remembered things vs how I did, and how we reminded each other of situations that belied our first instincts when answering. And it made him think about his own life a lot. He nodded and said “Me too!” a bunch of times. I don’t know that he’ll go for full testing, but the awareness that he’s not the only one, and that there are other people who struggle the same way has given him a new perspective. He’s made a couple of positive changes in the last few years, and instead of feeling defeated, he’s inspired to continue making little changes to keep improving. I hadn’t expected to find such a kindred spirit in my dad as we’ve never talked about the aspects of our lives that have given us such trouble before. But it was truly awesome to talk to someone who totally understood!

    @MonkeyBarb – My dad and I both talked a lot today about guilt and shame, and we have both chosen to experience it, but not to dwell on it. It ebbs and flows for me, but I have always seen the glass half full, and this time I think it’s really important to keep a positive outlook. We can’t change the past, but we have full control of the future.

    My dad is 71 and he and I both are wondering just what we might accomplish now that we have a better understanding of both our limitations and our strengths. I feel like I have a lot of learning to do, but I have a new core strategy of working with my strengths instead of trying to overcome my limitations. It’s a huge shift in thinking, but it’s giving me a lot of positive feelings about what’s to come!

    Please do keep us posted – you might be surprised by your doctor, and if you’re not, keep trying. It is worth it to find someone who is willing to work with you on this journey.

    REPORT ABUSE
    #108454

    Anonymous
    Inactive
    Post count: 14413

    Good luck MonkeyBarb. Funnily enough, I used to wonder if I had something wrong with me that my mother never told me about (and Asperger’s was one that crossed my mind). I felt socially out of step with others for most of my life, and those social difficulties were what made me think of Asperger’s. ADHD never crossed my mind until my son was diagnosed with it. Interestingly enough, my daughter was treated for anxiety issues, and the psychologist who treated her said that she came very close to an Asperger’s diagnosis, but didn’t quite meet the diagnostic criteria (but not by much). My daughter’s teacher also agrees that she skirts the edge of the autism spectrum disorders. So my poor girl will struggle through life, without a diagnosis to “support” her and give her teachers guidance.

    Stash – I hope your appointment goes well. I am still writing things down, even after my initial appointment. I figure I will be going back for more assessment (as the appointments are all only 1 hour, and more is needed for a full ADHD assessment), so it can’t hurt to continue with my notes. Especially as his questions have helped my brain to dredge up more memories since seeing him. He loved that I had my school reports. Information from another source (rather than the patient), especially for younger years, is highly weighted apparently, and is considered better evidence than what the patient says about the past. My doc took my notes, my ADHD self tests, and my reports to read before the next appointment, rather than reading during the appointment.

    REPORT ABUSE
    #108455

    nellie
    Member
    Post count: 596

    Stash,Just discovered this thread.

    Now I’m spellbound – you said you went to the appointment – so what did they say :-) Don’t leave us hanging in curiosity!!

    All of you who have the benefit of old report cards with “negative” comments – lucky you! That sounds awful but really you’re lucky to at least have comments. My mother kept most of my elementary school report cards and gave them to me years ago. When I dragged them out of their storage box thinking I would uncover a treasure trove of insight into my early years, I couldn’t believe what I discovered. There were perhaps 2 or 3 comments total for all those years if remember correctly. I think all they said was “could do better” or something equally useless. The check marks were mostly under Satisfactory. So I felt really ripped off. In hindsight they basically ignored me. I had a real hard time socially and was the one in class usually picked last etc. Yad think one teacher in 6 years would have noticed something wasn’t quite right! My kids had comments up the wazoo to make up for it though :-)

    REPORT ABUSE
    #108456

    Anonymous
    Inactive
    Post count: 14413

    Nellie, my report cards had nowhere near the comments that I thought they would. Thankfully a select handful contained good chunks of ADHD-supporting comments (which were the ones I took to the doc), but the rest were depressingly positive. Probably because I did very well in school, but it was DESPITE my issues, and I know I could have done so much better if I had been able to motivate myself to study and pay attention more. I went from a gifted student program in primary school, through to getting boringly average grades in my final year. I guess it’s a matter of hoping a doctor will be able to read between the lines. I certainly hope that my doc will see that a student of my initial promise should have done much better than I did, even though my grades were above average for most of my schooling. My high average grades went to average grades in my final year of high school, and then on to failing two subjects at uni, before dropping out completely.

    Stash – You must have posted your post while I was writing mine (I had it up on the screen for ages, while I ate, before I posted it). How did the appointment go? Did you get any results, or do you have to go back again?

    REPORT ABUSE
    #108457

    nellie
    Member
    Post count: 596

    Well Krazy Kat, just because we’re ADD doesn’t mean we’re ready for institutionalization and lobotomies:-) No surprise that your school grades vary.

    Mine in high School and university were all over the place as well. I had no trouble when I was interested in a subject or teacher. Too bad there weren’t enough interesting teachers:-)

    REPORT ABUSE
    #108458

    Anonymous
    Inactive
    Post count: 14413

    My most hilarious failure was the subject Library Studies, that we did in early high school years. I have read large volumes of books through my life, and have been able to use a library since I was young, so I should have been able to pass the subject with my eyes closed, but it was so boring and tedious that I don’t think I bothered to do most of the work – I got 32% LOL!!!

    REPORT ABUSE
Viewing 15 posts - 31 through 45 (of 67 total)