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Ginniebean

Ginniebean

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Viewing 15 posts - 16 through 30 (of 46 total)
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  • Ginniebean
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    Post count: 51

    There are support groups in the major cities. I know there is CHADD, and there are others tho they can be hard to locate.

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    in reply to: Why was I not diagnosed when I was a child! #115167

    Ginniebean
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    Post count: 51

    I think it’s way to easy to think that a childhood diagnosis would mean you’d be better off. It’s often not the case. Children don’t have the means to say this feels awful when they have side effects and are often punished for misbeahviour. Teachers often stigmatize the child and instead of offering accommodation offer generous hearings of condemnation and blame. Parents, pull you off medication, then put you back on, blame you for medication not working.

    The grass is not always greener. How many of you would silently put your treatment in another’s hands, even someone you love?

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    Ginniebean
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    Post count: 51

    How is schoo? Is everything ok there? Is he being bullied? is he being singled out by a teacher? It’s important to know why this is happening.

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    in reply to: Threads still not showing up. #114488

    Ginniebean
    Member
    Post count: 51

    It’s my fault, I made the initial thread and put a link in to a news item, I didn’t know why it wasn’t showing up, then I saw what I thought was the same thread only the first post was still not showing up, so I just posted that I didn’t know what I’d done wrong and then reposted the link thinking maybe it would show up but then I wrecked thread number two.

    Derp…

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    Ginniebean
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    Post count: 51

    I don’t know what I did wrong or why it’s not showing up. There was an article in the news,

    http://www.dailytelegraph.com.au/technology/sci-tech/one-in-three-faking-adult-adhd-researcher/story-fn5h1ywy-1226362631505

    And it’s been picked up by a number of publications.

    I don’t know what to make of it but it just doesn’t sound good.

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    in reply to: Which Myers Briggs Personality Profile are you? #100531

    Ginniebean
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    Post count: 51

    I never can tell it’s either INTP or ENTP I go back and forth on the introvert/extrovert thing. The others I’m very sure about.

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    in reply to: Just got a couple of questions #110939

    Ginniebean
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    Post count: 51

    I used to feel just awful about the ‘no interrupting’ rule. Some make it out to be as bad as if you punched their first born infant. The normal give and take of a conversation is about 30 seconds and then the next person talks so when people start monologuing and demanding my attention for much longer than that, then all bets are off.

    I won’t remember everything they said, it’s rude, and at least as rude as interrupting. If they also know I have adhd then it’s even more rude. It hasn’t happened often but when I do get it, “stop interrupting” I respond with “then stop monologuing” and beyond that, I’ll walk away from the conversation, if they actually want to be heard and want a reply, there’s e-mail.

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    in reply to: I just felt like saying #114500

    Ginniebean
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    Post count: 51

    congrats Taylor

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    in reply to: Bipolar or ADD or both #114099

    Ginniebean
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    Post count: 51

    Russell Barkley has stated (and darned if I can actually find the quote) that there should be no diagnosis of bipolar II if the main diagnosis is adhd, because ALL of the symptoms of bipolar II can be accounted for by adhd.

    My guess, yes, there’s a whole lot of people who have been misdiagnosed.

    http://www.corepsychblog.com/2009/04/adhd-and-bipolar-controversy-explored-at-corepsych-radio/ The reference to Dr Barkley can be found here, he’s being referenced by another ADHD specialist Dr. Charles Parker who is legit, it’s in the comment section where he states this.

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    in reply to: Not diagnosed yet but it fits so well– #96761

    Ginniebean
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    Post count: 51

    See if you have a local chadd organization, phone them, they’ll often give you the names of some specialists, keep in mind that the wait is looooong and the specialists are few.

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    Ginniebean
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    Post count: 51
    Quote:
    With ADHD we should be able to do the same without fear of losing our jobs etc. But very few of us have been beaten up for having ADHD; we probably haven’t had extremists hurling insults at us like so many in the LGBT community have had to endure, etc. If I can’t compare myself, it’s because I have no right to claim that level of marginalization.

    Really? You don’t think kids with adhd get beaten up for being differerent? Bullied emotionally to the point of suicide? Getting fired, losing friends, losing intimate relationships?

    I don’t want to say any ism is worse than another, discrimination is real, and no matter who feels it, it harms. Mental illness discrimination, bigotry, bias, exclusion, is ranked at the verrrry top of the list in terms of intractability, we’ve made almost NO GAINS!

    I do think we can learn a lot from the LGBT community in terms of switching around the rhetorical paradigms as they did so successfully. I just want to also say do not underestimate the amount of discrimination we face, and I think this is really important as most people feel too frightened about even mentioning a diagnosis of adhd for fear of losing a job or friends. In that sense we’re still in the closet and I ask myself, do I want my grandchildren to be there too?

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    Ginniebean
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    Post count: 51

    ADHD is not comparable to any of the diseases mentioned above, it is a developmental disability more akin to other chronic conditions like, blindness, deafness, lameness, HFA, Aspergers, etc… All of the above conditions speak of qualities arising out of their loss of function as people with adhd do. The difference being that there have not been well orchestrated campaigns denying their conditions or minimizing them by positive psychology proponents. Because adhd has been the subject of contrived controversy a rigid and inflexible response has come forth out of the adhd community that demands that ADHD only be seen thru a lens of impairment and tragedy.

    Blindness is not a disease state any more than adhd is.

    ADHD is a serious condition, it does impair, it does wound and it.can kill. I am sympathetic to this inflexibility but I think it has the potential to be as damaging as the raging gifter nonsense that undermined adhd legitimacy as a disability.

    I recently lost my father and along with my loss came the ability to connect in a real way with others who had lost a parent. This visceral knowledge is only an advantage when attending to the grief of another but by no means is it an advantage professionally, or across other domains or situations. Living our lives with a condition that permeates ever part of our lives is a huge event, to suggest that nothing ‘good’ comes out of our experience is throwing the baby out with the bathwater. Adversity can be quite a teacher.

    The neurodiverse movement is not a gifter movement. It is an exercise in confronting ablism that says we need to squeeze ourselves into an ideality template that does not fit and cannot fit. We are neurologically different but this does not mean we have to be an inferior neurological caste member bowing and scraping and apologizing for our condition. Neurodiversity is about civil rights and other stuff.

    I hope I wasn’t harsh, I tend towards bluntness but have no intention of being mean.

    ADHD is no gift yet we’re not bereft of the qualities that arise out of being different and I see no reason not to celebrate those differences.

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    in reply to: My 12 year old son hates taking his medicine! #114267

    Ginniebean
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    Post count: 51

    You are doing the right thing by medicating. I would never say otherwise, the benefits are just too great!

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    Ginniebean
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    Post count: 51

    The thing is no researchers are looking for the upsides of adhd, they are looking for the deficits. It needs to be taken into account that our experience does count.

    There are good reasons to find positives about adhd, not the least being that if there are ‘none’ then it’s been shown in studies that acceptance of ADHD as a disability and willingness to accomodate it will be lessened when there is ‘no hope’.

    I understand that the whole feel good positivity vibe which is a staple of the adhd satellite businesses cost us a lot in terms of being recognized by labelling adhd as a gift. I’m not a fan of the positivity crowd and their ‘adhd is a cheer deficit’ mantra, I don’t need happy thoughts, I’m by nature optimisitic and that has been as much to my detriment as anything else because my attitude of ‘things will get better and better’ has flown in the face of reality.

    Yes, we do need to take the disorder seriously but demanding that research be provided for positive benefits is intellectually dishonest as everyone knows there is precisious little and that isn’t what researchers are charged with looking for. It’s a disservice to people with adhd to say that our actual experience is of no significance, and reminds me of how many ‘psychosomatic’ illnesses have later been shown to be not only real but cause great suffering. The it’s not real until there’s proof causes needless suffering and in the end works against us.

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    in reply to: Invisible Disability #114275

    Ginniebean
    Member
    Post count: 51

    Actually, we already do have that, it’s called sleep deprivation. Have people go without sleep for a day or two and then try and go about their day as normal. Oh with the added benefit of having others urge them on with “try harder”.

    or, researchers could continue their quest for the adhd holy grail, a bio marker.

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Viewing 15 posts - 16 through 30 (of 46 total)